Mitochondrial Disease Resources
United Mitochondrial Disease Foundation is the main advocacy and awareness organization for all types of mitochondrial diseases.
Mito Action is a nonprofit formed by parents and healthcare advocates and based out of Boston. It's a great place to find information about living with mito.
Together We Fight Mito is a grassroots organization put run by a group of mito parents advocating for their kids by raising awareness and raising money for the UMDF.